National Organization for Rare Disorders (#NORD) is the voice of the #raredisease community. Official U.S. sponsor of #RareDiseaseDay
The #LivingRareForum is taking place July 18-19! See what people are saying about this truly patient-centric event filled w/ opportunities to connect & learn with those in the #raredisease community. Register now:
HAPPENING TOMORROW: NORD's #RareAction Network will host 2 #COVID19 virtual discussion groups in #NC , #Kansas & #Nebraska . Be a part of the discussion! Join the #raredisease community in your state to share concerns, connect & hear updates. More:
Register today! Join us live on Tues, 6/2 @ 12pm ET for an interactive video education program about #hemophilia A. Hear from a panel of specialists, experts & a parent of a child currently living with the disorder. Register now:
The big day is here! Today is Rare Disease Day and it's time to Show Your Stripes! How are you getting involved? Why is this day important to you? Share on social media using the hashtags #RareDiseaseDay and #ShowYourStripes to make an impact and raise awareness!
What an incredible way to close out #RareDiseaseDay 2019 in the United States! Thank you for lighting up New York City in honor of the biggest day of the year for 350 million people around the globe impacted by . #rarediseases #ShowYourStripes #ShowYourRare
Today is #UndiagnosedDay , a day to raise awareness for the #undiagnosed #raredisease community. What is an undiagnosed disease? According to , it is a medical condition without a known cause despite a lot of evaluation. Retweet to spread the word!