NORD

NORD


National Organization for Rare Disorders (#NORD) is the voice of the #raredisease community. Official U.S. sponsor of #RareDiseaseDay

33456 followers  •  3514 follow  •    •   http://t.co/vS7xnRr9gi

Join #NORD  and @power4patients  for the tweetchat, "Ending #Isolation : Tips for Connecting & Resources for Support" Follow #patientchat  on Friday, June 12 at 10am ET! #raredisease  More info:

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The #LivingRareForum  is taking place July 18-19! See what people are saying about this truly patient-centric event filled w/ opportunities to connect & learn with those in the #raredisease  community. Register now:

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HAPPENING TOMORROW: NORD's #RareAction  Network will host 2 #COVID19  virtual discussion groups in #NC , #Kansas  & #Nebraska . Be a part of the discussion! Join the #raredisease  community in your state to share concerns, connect & hear updates. More:

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#SLC6A1Connect was featured in a recent article about how #COVID19  has had a devastating impact on the pace of research in the #raredisease  community. More:

Register today! Join us live on Tues, 6/2 @ 12pm ET for an interactive video education program about #hemophilia  A. Hear from a panel of specialists, experts & a parent of a child currently living with the disorder. Register now:

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@MyelitisAssoc  recently hosted a podcast entitled "Latest Update #COVID19  on and #Neuroimmuneare  Disorders" featuring Dr. Benjamin Greenberg and Dr. Michael Levy. You can listen to the podcast and read the transcript here:

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It's here! Today is #RareDiseaseDay ! Retweet to show your support for the #raredisease  community today!

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The big day is here! Today is Rare Disease Day and it's time to Show Your Stripes! How are you getting involved? Why is this day important to you? Share on social media using the hashtags #RareDiseaseDay  and #ShowYourStripes  to make an impact and raise awareness!

With every click until #RareDiseaseDay , you will raise $1 for #raredisease  research. Make a difference here:

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What an incredible way to close out #RareDiseaseDay  2019 in the United States! Thank you for lighting up New York City in honor of the biggest day of the year for 350 million people around the globe impacted by . #rarediseases  #ShowYourStripes  #ShowYourRare 

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FACT: There are 7,000 known #rarediseases . Retweet to raise awareness on #RareDiseaseDay !

Today we're very excited to premiere our one-of-a-kind PSA for #RareDiseaseDay ! Learn how you can #DoYourShare  at:

Today is #UndiagnosedDay , a day to raise awareness for the #undiagnosed  #raredisease  community. What is an undiagnosed disease? According to , it is a medical condition without a known cause despite a lot of evaluation. Retweet to spread the word!

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